It all Started when I was very young, I was 5 and Started To realize my mom's balance wasnt like the other kids mom's. It was just my mom and I, so I instinctively helped her as much as a 5 year old could. As I got older she got worse, and I could help more. That's exactly what I did. She ended up being misdiagnosed with polyneuropathy in the mid 90s. She got worse over the years, and eventually could not walk at all. In 2008-09 we found out she had a tumor growing all throughout her spinal cord. which was in fact the cause of why she was losing and eventually lost the ability to walk at all. She can't feel her legs and feet, or anything below the belly button. She ended up getting bed sores, so I change her wound dressings daily, and a nurse comes one day a week. She takes pictures of her progress. I have experienced with the wound vac, and right now we just use silver nitrate and barrier cream, and flip her on her sides for two hours. This is the second time she's had these sores so they won't ever heal fully. I used to get paid by seiu (doors) to be her caregiver but they cut her off for her assets. So I still take care of her and do everything the same 7 days a week any way. I am fully qualified, I run arrends, prepare meals, clean, so laundry, bathe her and just tend to her needs.
Caregivers that work non-full-time jobs or irregular shifts can negotiate extra compensation in addition to their standard hourly wage.
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